Coraline’s annual check up at four years old after paediatric heart surgery at fifteen months old for her Atrioventricular Septal Defect (AVSD).
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When Coraline was a few weeks old, her skin reacted badly to what was marketed as a natural and organic liquid soap product.
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“How does Coraline sleep?”
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Coraline popped into our new @coralineskincare shop after preschool yesterday to see Kev on opening day.
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“What are three truths about living with a person with special educational needs that you wish everyone knew?”
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“What medical coverage does Coraline receive?”
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“What are your plans for the holiday season? Do you arrange them around Coraline’s needs?”
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“One of the beautiful things our children have brought us is the community we create with other families. What is one of the most special encounters you have had?”
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As this month is #downsyndromeawarenessmonth each Monday each of us will either write a fact or a myth about Down’s syndrome.
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This week's fact about Down’s syndrome for #downsyndromeawarenessmonth: About 50% of babies with Down’s syndrome are born with a heart condition.
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“Do you think you will have to fight for Coraline to get the same rights as others?”
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Today is the six month anniversary of us launching our own handmade organic soap business Coraleen Organic Skincare
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Kev is a pretty remarkable man. He’s the best husband and dad and is always there to make Coraline, and me, laugh. And to inspire us to just go for it.
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“Tell us about your feeding journey with your child with special educational needs. Did you have to take anything particular into account?”
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“Do you take notes when your child has appointments? Do you do extra research too?”
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“Are you taking any special precautions for your child with special educational needs during Covid 19?”
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I love how much passion, thought and care Kevin takes over Coraline’s food.
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National Heart Month: About 50 percent of children with Down’s Syndrome have a congenital heart condition. Coraline has an Atrioventricular Septal Defect.
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“What steps did you follow in order to get the help you needed for your child?”
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“How is your child with Down’s syndrome reacting to the holiday season?”
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