National Heart Month: About 50 percent of children with Down’s Syndrome have a congenital heart condition. Coraline has an Atrioventricular Septal Defect.
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Here is a post on why Coraline had open heart surgery. About 50% of babies with Down's syndrome have a congenital heart condition. Coraline has an AVSD.
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How fortunate we were to be heading to a hospital like this, where everyone we met lived these values.
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An amazing thing they do in the P.I.C.U. at the Evelina is to give each child and parents a notebook to write in about what happens daily.
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What do we say to the N.H.S.? Thank you! We appreciate you and what you do and how you do it.
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Our daughter was diagnosed at birth with Down's syndrome and an Atrioventricular Septal Defect. She had open heart surgery for it at fifteen months old.
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“Don’t worry, I’m a pretty good judge of character”
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So to the moment, the wonderful moment, when I met Coraline's Consultant Paediatrician together with Kevin (who had already met him). He smiles when he talks, so you smile when you listen. I told him, "I could listen to you all day".
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The nurses from the ICU, so taken with Kev's energy and devotion visiting and being with her, found a bed they had and wheeled it to our room for him (dads normally sleep in a chair).
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Our baby was born by caesarean as her growth rate had slowed. She was diagnosed with Down’s syndrome at birth. We had amazing care from the midwives.
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Our baby had a little scrap of blanket with her in the ICU and meanwhile I had a matching one. These were swapped between us so that she had my scent with her.
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"My respect for him has always been high but now it's stratospheric. He's set the tone for us all. You've got a treasure there. He's just the right mix of quick witted and immensely practical".
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