Coraline’s annual check up at four years old after paediatric heart surgery at fifteen months old for her Atrioventricular Septal Defect (AVSD).
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Coraline popped into our new @coralineskincare shop after preschool yesterday to see Kev on opening day.
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“Do you like it when someone with Down’s syndrome, or someone who has a family member with Down’s syndrome, comes over and says hello?”
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I remember when my daughter was born in the summer of 2017. For me the moment she was born is a defining moment in my life. I believe my purpose was delivered to me that day.
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Home-Start UK featured this piece about my volunteering with them on their Facebook, Instagram and Twitter pages.
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“What are your plans for the holiday season? Do you arrange them around Coraline’s needs?”
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This week's fact about Down’s syndrome for #downsyndromeawarenessmonth: About 50% of babies with Down’s syndrome are born with a heart condition.
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“What made you decide to share Coraline’s life on social media and how do you think it can be helpful?”
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“What is the hardest thing you’ve had to hear since Coraline was born?”
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“What would you say to a family who has just received the same diagnosis as your child?”
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“Did you feel comfortable with the person who gave you your child’s diagnosis? And with the rest of the professionals you dealt with? What would you have preferred? "
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Kev is a pretty remarkable man. He’s the best husband and dad and is always there to make Coraline, and me, laugh. And to inspire us to just go for it.
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“Do you take notes when your child has appointments? Do you do extra research too?”
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If I win these baas of soap I nominate Dieudonné to receive them, the Consultant Paediatrician in hospital the week Coraline was born.
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Thrilled to be featured on Positive About Down Syndrome today, about writing this Blog
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National Heart Month: About 50 percent of children with Down’s Syndrome have a congenital heart condition. Coraline has an Atrioventricular Septal Defect.
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Kevin and Coraline yesterday after her Cardiology check up. They said she’s doing great and our next appointment is in a year!
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As it is World Down Syndrome Day next Thursday 21st March, the Down’s Syndrome Association asked me to write a piece for them about people and their response to finding out a baby has Down's Syndrome: us, our family, and our friends.
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Thanks to everyone we’ve met at the Evelina for all you do for everyone in your care daily! We appreciate all of it, and the warm way you do it
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Our last Cardiology check up until about April 2019.
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