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Coraline & Us

Annual paediatric heart surgery check up

 
 
 

Coraline had her annual Cardiology appointment today, this time in Devon. All looks good, so we can go back in a year 😄

Our Devon town, Topsham

Topsham sunset

 
 
 
 
 
 
 
Awareness, Hospital, HealthLizMay 23, 2022
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Week in Greece

Attitude, TravelsLizMay 25, 2022
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The Education Health Care Plan (EHCP) Complaints procedure

Therapies, EHCPLizApril 27, 2022

Useful Links

Baby Lemonade

Cedar's Story

Noah's Dad

That Dad Blog

John's Crazy Socks

Down's Syndrome Association

Canadian Down's Syndrome Society

Down's-syndrome.org.uk

 

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View fullsize I’ve joined a group of mums to answer a Monday question. . Today’s is: “What is your child like personality-wise?” . I have written before about when I asked my dad, “but why would people like me?” (at a time when
View fullsize I found these pictures yesterday by chance when looking for some photos of Coraline when she was younger, for a guest post I was writing. . They are from mid November 2018 when we took Coraline back for a check-up after her open heart surgery earlier
View fullsize Kev has been taking some beautiful pictures of Coraline lately. . We thought, as it’s Father’s Day tomorrow, that Kev could take the floor on here and answer any questions you have for him over the next couple of days. See our stories. .
View fullsize I thought I’d post this which I wrote a while back. . A conversation yesterday (about the importance of accepting all emotions, and allowing and honouring them, as then they move through) reminded me of it. . When Coraline was born I was in sho
View fullsize Post 2 of 2 on feeding: . Coraline has sweet potatoes, sardines, kale, curry, scallops, prawns, this kind of thing. . She vary rarely has pasta and has hardly ever had bread. Some parents of children with Down’s syndrome have told us that glute
View fullsize I’ve joined a group of mums to answer a Monday question. Today’s is: . “Tell us about your feeding journey with your child with special educational needs. Did you have to take anything particular into account?" . I have loads
View fullsize I love this picture which Kevin took yesterday morning. Coraline is in her new giraffe T-shirt. . I was singing nursery rhymes and Coraline was joining in on some of the actions to them which she loves to do. . As Coraline is not yet talking we know
View fullsize I’ve joined a group of mums to answer a Monday question. This week’s is: . “Do you take notes when your child has appointments? Do you do extra research too?” . Yes! I take notes! They are almost verbatim notes! Those kind of
View fullsize After Coraline was born and thereafter, I was looking for books written by parents of children with Down’s syndrome. I suppose it’s a bit like an internet search, you keep looking until you find what you want to hear. . I would think to m
View fullsize I have shoeboxes for each year since August 2017, the summer Coraline was born. . I put in little treasured items, postcards from friends, or news clippings from that year. . In 2017’s box there are all the amazing cards we received when Corali
View fullsize I’ve joined a group of mums to answer a question on a Monday. Today’s question is: . “Are you taking any special precautions for your child with special educational needs during Covid 19?” . We are doing the usual; staying hom
View fullsize I love how much passion, thought and care Kevin takes over Coraline’s food. . Today’s al fresco lunch he prepared for her: Courgette ribbons with lemon, parmesan, truffle and pistachios. . #toddlerlife #toddlerfood #downsyndrome #downsynd
View fullsize I’ve joined a group of mums to answer a Monday quesion. This week’s is: . “When deciding on school, day care or a carer for your child with special needs, what type of things do you take into account?” . For us, it’s abo
View fullsize I couldn’t choose my favourite picture, so here they all are. Hair transition by Kevin.
View fullsize I find that I am noticing more after 9 and a half weeks in lockdown. Are you noticing more? . When I take Coraline for a walk I look out for the flowers, and the blossoms, and I stand close and marvel at their colour and design. They bring me wonder
View fullsize

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