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Home Blog Full Blog Attitude Awards Awareness Birth Book Breastmilk Coraline Skincare Development Education EHCP Food Health Lockdown Hospital Inspire Coraline Lifecoach wisdom Local groups Monday question Philosophical Pregnancy Prima Magazine Speech Therapies Travels Values Top Tens About About Us Announcing the Birth Why I am writing this blog My Values Where we have been featured Books, articles & TV we like Awards Friends Format Friends' Stories Guest Topics Coraline SkincareFavourite itemsHire meContact
Coraline & Us
Planning leisure activities
Planning leisure activities

“When you plan leisure activities, do you do so based on your child’s needs?”

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Lockdown, Monday question, AttitudeLizJuly 13, 2020
What other people think
What other people think

“Do you care about what other people say or think?”

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Attitude, Lockdown, Monday questionLizJuly 6, 2020
Holly Tucker's last tea party
Holly Tucker's last tea party

I love that Holly said that by launching @coraleenskincare in February 2020 we will have learned so many lessons which might otherwise have taken a year.

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Lockdown, Coraleen Skincare, AttitudeLizJuly 4, 2020
What do you do?
What do you do?

“What do you do on a day-to-day basis? Do you work?”

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Lockdown, Monday question, Awareness, Coraleen SkincareLizJune 29, 2020
Personality
Personality

“What is your child like personality-wise?”

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Development, Lockdown, Monday questionLizJune 22, 2020
Kevin's third Father's Day
Kevin's third Father's Day

Kev is a pretty remarkable man. He’s the best husband and dad and is always there to make Coraline, and me, laugh. And to inspire us to just go for it.

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Attitude, Development, Hospital, Lockdown, HealthLizJune 21, 2020
It's O.K.
It's O.K.

Kevin has always said how important it is to fully feel feelings. They can then pass much more easily.

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Attitude, Birth, Lockdown, ValuesLizJune 18, 2020
Feeding journey
Feeding journey

“Tell us about your feeding journey with your child with special educational needs. Did you have to take anything particular into account?”

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Attitude, Development, Food, Health, Lockdown, Monday questionLizJune 15, 2020
Talking to Coraline
Talking to Coraline

We are always talking to Coraline and saying out loud what she is playing with or doing.

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Lockdown, Attitude, Development, Education, SpeechLizJune 13, 2020
Note taking
Note taking

“Do you take notes when your child has appointments? Do you do extra research too?”

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Lockdown, Monday question, Development, Speech, Therapies, Health, HospitalLizJune 8, 2020
My book
My book

Let me find a book where the parents are flying, where the parents are happy, where they love life and where they tell me their child is flourishing.

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Attitude, Birth, LockdownLizJune 5, 2020
Lockdown letter
Lockdown letter

I have shoeboxes for each year since August 2017, the summer Coraline was born.

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Lockdown, AttitudeLizJune 4, 2020
Covid-19 precautions
Covid-19 precautions

“Are you taking any special precautions for your child with special educational needs during Covid 19?”

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Lockdown, Monday question, Attitude, HealthLizJune 1, 2020
Lunch al-fresco
Lunch al-fresco

I love how much passion, thought and care Kevin takes over Coraline’s food.

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Health, Lockdown, FoodLizMay 26, 2020
How do we choose a school?
How do we choose a school?


“When deciding on school, day care or a carer for your child with special needs, what type of things do you take into account?”

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Lockdown, Monday question, Attitude, Development, EducationLizMay 25, 2020
Noticing
Noticing

I find that I am noticing more after 9 and a half weeks in lockdown. Are you noticing more?

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Attitude, LockdownLizMay 22, 2020
What's in a name?
What's in a name?

@miss.gisa asked us how we thought of Coraline’s name.

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Lockdown, Birth, Pregnancy, Monday questionLizMay 19, 2020
Any questions for us?
Any questions for us?

“Today the question is for all of you. Do you have any questions you would like to ask us?”

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Lockdown, Monday questionLizMay 18, 2020
Top 10 feel good: 10: Kindness and thinking of others
Top 10 feel good: 10: Kindness and thinking of others

Last one on my list of ten things keeping me feeling good and productive at this time.

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Lockdown, AttitudeLizMay 14, 2020
A welcome toy
A welcome toy

Our neighbours with small children passed this little machine on to us before lockdown began.

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Lockdown, DevelopmentLizMay 12, 2020
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Useful Links

Baby Lemonade

Cedar's Story

Noah's Dad

That Dad Blog

John's Crazy Socks

Down's Syndrome Association

Canadian Down's Syndrome Society

Down's-syndrome.org.uk

 

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View fullsize I’ve joined a group of mums to answer a Monday question. . Today’s is: “What is your child like personality-wise?” . I have written before about when I asked my dad, “but why would people like me?” (at a time when
View fullsize I found these pictures yesterday by chance when looking for some photos of Coraline when she was younger, for a guest post I was writing. . They are from mid November 2018 when we took Coraline back for a check-up after her open heart surgery earlier
View fullsize Kev has been taking some beautiful pictures of Coraline lately. . We thought, as it’s Father’s Day tomorrow, that Kev could take the floor on here and answer any questions you have for him over the next couple of days. See our stories. .
View fullsize I thought I’d post this which I wrote a while back. . A conversation yesterday (about the importance of accepting all emotions, and allowing and honouring them, as then they move through) reminded me of it. . When Coraline was born I was in sho
View fullsize Post 2 of 2 on feeding: . Coraline has sweet potatoes, sardines, kale, curry, scallops, prawns, this kind of thing. . She vary rarely has pasta and has hardly ever had bread. Some parents of children with Down’s syndrome have told us that glute
View fullsize I’ve joined a group of mums to answer a Monday question. Today’s is: . “Tell us about your feeding journey with your child with special educational needs. Did you have to take anything particular into account?" . I have loads
View fullsize I love this picture which Kevin took yesterday morning. Coraline is in her new giraffe T-shirt. . I was singing nursery rhymes and Coraline was joining in on some of the actions to them which she loves to do. . As Coraline is not yet talking we know
View fullsize I’ve joined a group of mums to answer a Monday question. This week’s is: . “Do you take notes when your child has appointments? Do you do extra research too?” . Yes! I take notes! They are almost verbatim notes! Those kind of
View fullsize After Coraline was born and thereafter, I was looking for books written by parents of children with Down’s syndrome. I suppose it’s a bit like an internet search, you keep looking until you find what you want to hear. . I would think to m
View fullsize I have shoeboxes for each year since August 2017, the summer Coraline was born. . I put in little treasured items, postcards from friends, or news clippings from that year. . In 2017’s box there are all the amazing cards we received when Corali
View fullsize I’ve joined a group of mums to answer a question on a Monday. Today’s question is: . “Are you taking any special precautions for your child with special educational needs during Covid 19?” . We are doing the usual; staying hom
View fullsize I love how much passion, thought and care Kevin takes over Coraline’s food. . Today’s al fresco lunch he prepared for her: Courgette ribbons with lemon, parmesan, truffle and pistachios. . #toddlerlife #toddlerfood #downsyndrome #downsynd
View fullsize I’ve joined a group of mums to answer a Monday quesion. This week’s is: . “When deciding on school, day care or a carer for your child with special needs, what type of things do you take into account?” . For us, it’s abo
View fullsize I couldn’t choose my favourite picture, so here they all are. Hair transition by Kevin.
View fullsize I find that I am noticing more after 9 and a half weeks in lockdown. Are you noticing more? . When I take Coraline for a walk I look out for the flowers, and the blossoms, and I stand close and marvel at their colour and design. They bring me wonder
View fullsize

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