“Do you like it when someone with Down’s syndrome, or someone who has a family member with Down’s syndrome, comes over and says hello?”
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I remember when my daughter was born in the summer of 2017. For me the moment she was born is a defining moment in my life. I believe my purpose was delivered to me that day.
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“What made you decide to share Coraline’s life on social media and how do you think it can be helpful?”
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“What is the hardest thing you’ve had to hear since Coraline was born?”
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“Joli coeur” is right!
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“What would you say to a family who has just received the same diagnosis as your child?”
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“Did you feel comfortable with the person who gave you your child’s diagnosis? And with the rest of the professionals you dealt with? What would you have preferred? "
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Kevin has always said how important it is to fully feel feelings. They can then pass much more easily.
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Let me find a book where the parents are flying, where the parents are happy, where they love life and where they tell me their child is flourishing.
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@miss.gisa asked us how we thought of Coraline’s name.
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Thrilled to be featured on Positive About Down Syndrome today, about writing this Blog
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Our baby was born by caesarean, as she was in the breech position and her growth rate had slowed. She was diagnosed at birth with Down’s syndrome.
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At 36 weeks we discovered our baby was in the breech position. We had two external Cephalic Versions to try to turn her into the head down position.
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As it is World Down Syndrome Day next Thursday 21st March, the Down’s Syndrome Association asked me to write a piece for them about people and their response to finding out a baby has Down's Syndrome: us, our family, and our friends.
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Our article in Sutton & Epsom NCT magazine, Winter 2018 Edition, about our parenting experiences: “Love, acceptance and gratitude. Those are the three key things I think. I have adored these past months as a family with Coraline. My advice to other parents would be those three words: love, acceptance, gratitude.”
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“Seeing Liz and Kevin’s love ensure that Coraline has only a positive, can-do outlook on life as she grows up reminds me that I must do the same - for myself.”
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“Don’t worry, I’m a pretty good judge of character”
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Bigger than Benedict
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Kevin suggested we go back to the ward where we were for her first week. We wanted to go in and remember, and thank them for the amazing care we received.
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Happy Birthday to our girl Coraline. One year old! This is you in your first week in hospital. I thought you were so beautiful then, as I do today.
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