Coraline’s lovely lady from Portage (educational home visiting service) comes fortnightly to work on developmental goals with her.
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I find the thought which goes into the exercises we do fascinating - for example there’s one where she sits on your knee and you jiggle your knee about, and that’s because she can’t quite hold her head up straight, and she has to really focus to try and keep her head up when you’re jiggling her
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The incredible thing about Coraline is that I am learning so much about life through her.
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I was having dinner with a friend this week. She was saying that it’s very hard not to compare how your baby is doing, based on when other babies do things. I felt wholehearted in my reply when I said it doesn’t even cross my mind.
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“I feel privileged to have met you as your experience has reminded me to watch out for judgmental moments.“
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Meeting him in our first week in hospital had the biggest impact on me due to his relaxedness, wisdom and positivity, which he simply exudes with his presence
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Coraline had her monthly Cardiology check on Monday - they said the top atrial hole has closed itself and the bottom ventricular hole has almost sealed due to tissue growing around it; there's just a mm gap.
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I am sharing my tips for expressing milk. I expressed breastmilk with a double electric breast pump for Coraline, our baby with Down’s syndrome, for seven months.
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"Remember rhythm and music are the foundations to the development of language."
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I do believe that the way you express yourself creates your experience, which is why our posts are positive. It is also how I feel.
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These are the values which underpin all our blog posts.
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Baby echocardiogram: Coraline was amazing today for her sedated heart echo at the Evelina. She didn’t have food for seven hours and was so well behaved.
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Margaret loved Coraline from the moment she met her. Watching them together is like mutual love.
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As weaning is approaching soon, her speech therapist explained to me that chewing muscles are fine motor skills and gross motor skills are the basis for that. Fascinating when you think about it.
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It stems back to the day Coraline was born and I still see flashbacks to that first week in hospital and to the time we were told, within an hour of Coraline’s birth, that she had Down’s Syndrome.
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Throughout the year of 2017 that I was pregnant we wrote to our future baby in a diary I had called “Every Day Matters 2017” in advance of the August due date. We told her what we were up to, recorded how I felt in pregnancy and what we were thinking.
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Considerations about weight gain for Coraline, our baby with Down’s syndrome
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I told her with such conviction, "if there's one thing I am certain about now, never let fear stop you from doing anything".
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Yesterday we noticed Coraline, our baby with Down’s syndrome, was having problems feeding. She was drinking less expressed breastmilk and taking longer to do so.
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Coraline will have her own portage worker from early next year until age three. They set objectives for play, behaviour, motor skills etc. and partner with speech language and occupational therapists.
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