A consideration which we have for Coraline just now is one regarding visitors. I thought I would share this as it's something we are thinking about in our world with her at the moment, in advance of her heart operation
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Ladybird symbolism: I suppose it symbolised 'abundant blessings are on the way; be open to receiving them'.
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We found ourselves telling the Irish midwife who came to our house on our first day home from hospital with Coraline all about this. She said, "well that encounter was meant to happen".
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We also liked it when they said, "she's cute; we see a lot of babies but she's really cute".
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Our daughter has two holes in the heart, a condition known as Atrioventricular Septal Defect (AVSD) which can be common in children with Down's Syndrome.
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I honestly think he was a major influence in making me the man I am today.....I learned so much."
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"No matter where you are in life, no matter what you go through, you are in the right place at the right time. The Universe is taking care of you"
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"So - you'll soon know Coraline well enough to tell what's possible with and for her and this is a wonderful feeling - it gives me a lot of confidence."
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We read one on "Self-Knowledge"; "The hidden well-spring of your soul must needs rise and run murmuring to the sea; And the treasure of your infinite depths would be revealed to your eyes".
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I told my friend I had watched Pablo Pineda's videos on YouTube recently and she said, "Pablo is so amazing that even 'language' has changed in Spain because of him; did you know that we do not say special needs anymore? We say different abilities."
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This wonderful Irish midwife chatted us through everything. She told us about a little boy called Oliver who she knew who has Down's Syndrome and said he had a beautiful disposition and that at a wedding, "everybody wants a dance with Oliver".
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We had read before we had Coraline about how it's great and reassuring for a baby if you talk them through what you're doing and what's happening. So that's what we have done since she was born.
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We try to do ten gratitudes in the morning, and at the end of the day look back over all the things we are grateful for which happened in the day and choose the top one. It's amazing how this just flips you into a mindset with a glow for the day.
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So to the moment, the wonderful moment, when I met Coraline's Consultant Paediatrician together with Kevin (who had already met him). He smiles when he talks, so you smile when you listen. I told him, "I could listen to you all day".
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The nurses from the ICU, so taken with Kev's energy and devotion visiting and being with her, found a bed they had and wheeled it to our room for him (dads normally sleep in a chair).
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Our baby was born by caesarean as her growth rate had slowed. She was diagnosed with Down’s syndrome at birth. We had amazing care from the midwives.
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We began to learn that sometimes it is difficult for babies with Down’s syndrome to breastfeed as they can have difficulties latching on.
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The Emotional impact of learning our baby had Down’s syndrome: A big thing Kevin has taught me is to feel your feelings fully. Don't try to stop them. If you feel them, they pass through. If you resist and enter into a dialogue with them with your mind, they persist.
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We've been told to wash our hands, use anti bacterial gel and dry them with kitchen towel
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Our baby had a little scrap of blanket with her in the ICU and meanwhile I had a matching one. These were swapped between us so that she had my scent with her.
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