Full Blog — Coraline & Us

Hearing

We had Coraline’s Audiology appointment this morning and they said her hearing is perfect and she has no glue ear (even though she has a cold).

Development, Health, Prima MagazineLizNovember 18, 2019

Health

Children with Down's Syndrome can have problems with their digestive system, and can have a slower metabolism (burning off calories at a 10-15% slower rate when exercising i.e. a lower resting metabolic rate of 10-15% )

Attitude, Development, Health, Values, FoodLizOctober 30, 2019

Freewheelin'!

Kevin and Coraline yesterday after her Cardiology check up. They said she’s doing great and our next appointment is in a year!

Health, Hospital, DevelopmentLizOctober 1, 2019

Coraline's cuisine

Kevin has high expectations of what she’ll eat (this week it’s various things + sorrel!)

Attitude, Development, Health, FoodLizJuly 15, 2019

First two teeth

Coraline is nineteen months old. Babies with Down’s Syndrome expect to get teeth through between the ages of one to two years old. For typical babies it’s from six months old and usually in a certain order (generally bottom central incisors first).

Development, HealthLizMarch 24, 2019

Cardiology check-up

Thanks to everyone we’ve met at the Evelina for all you do for everyone in your care daily! We appreciate all of it, and the warm way you do it

Health, HospitalLizFebruary 25, 2019

Back in the sling

Boxing Day walk

Development, HealthLizDecember 27, 2018

Fit to fly

Our last Cardiology check up until about April 2019.

Health, HospitalLizDecember 17, 2018

Steady

I think it's a key lesson to fully feel your feelings, whatever they are, fully feel them and they pass through. kev has oft said this to me.

Attitude, Lifecoach, Hospital, HealthLizDecember 4, 2018

First stop Australia

We went for Coraline’s Cardiology appointment this morning and they said she’s doing great so we can get out and about more.

Attitude, Health, Hospital, Development, TravelsLizNovember 21, 2018

Lionheart

Hamza. That’s what we named this little lion which Coraline’s Aunt, Uncle and cousins sweetly posted to us as a gift to open on the ward.

Health, Hospital, AttitudeLizNovember 17, 2018

On the menu today

Octopus for lunch

Development, Health, FoodLizNovember 15, 2018

Panda time

Coraline and her welcome home panda.

Development, Health, HospitalLizNovember 14, 2018

Heart surgery for an Atrioventricular Septal Defect

Here is a post on why Coraline had open heart surgery. About 50% of babies with Down's syndrome have a congenital heart condition. Coraline has an AVSD.

Health, Hospital, ICULizNovember 13, 2018

Evelina London values

How fortunate we were to be heading to a hospital like this, where everyone we met lived these values.

Attitude, Values, Health, Hospital, ICULizNovember 12, 2018

At Coraline's side

“I don’t know if I anaesthetised her or you hypnotised her”. I thought that was a rather lovely comment from the Anaesthetist.

Attitude, Health, HospitalLizNovember 10, 2018

P.I.C.U. journal

An amazing thing they do in the P.I.C.U. at the Evelina is to give each child and parents a notebook to write in about what happens daily.

Health, Hospital, ICULizNovember 9, 2018

Amazing N.H.S.

What do we say to the N.H.S.? Thank you! We appreciate you and what you do and how you do it.

Health, Hospital, ICULizNovember 8, 2018

Coraline's Paediatric Heart Surgery

Our daughter was diagnosed at birth with Down's syndrome and an Atrioventricular Septal Defect. She had open heart surgery for it at fifteen months old.

Hospital, Health, ICULizNovember 7, 2018