Knitted by Nana’s neighbour, Eva, in Ireland
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16 months old today!
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Everyday shots of my daily companion. There are too many pictures of her that I’d like to share.
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We’ve moved our coffee table so Coraline has more space now to encourage her movement.
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I think it's a key lesson to fully feel your feelings, whatever they are, fully feel them and they pass through. kev has oft said this to me.
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We went for Coraline’s Cardiology appointment this morning and they said she’s doing great so we can get out and about more.
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The U.K. Blog Awards are now open for voting! The deadline for voting is 21 December 2018.
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Hamza. That’s what we named this little lion which Coraline’s Aunt, Uncle and cousins sweetly posted to us as a gift to open on the ward.
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Octopus for lunch
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Coraline and her welcome home panda.
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Here is a post on why Coraline had open heart surgery. About 50% of babies with Down's syndrome have a congenital heart condition. Coraline has an AVSD.
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I am entering the 2019 Bloody Awesome Parents Awards (BAPS SEND Blog Awards) for parents and carers of children with additional needs.
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How fortunate we were to be heading to a hospital like this, where everyone we met lived these values.
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“I don’t know if I anaesthetised her or you hypnotised her”. I thought that was a rather lovely comment from the Anaesthetist.
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An amazing thing they do in the P.I.C.U. at the Evelina is to give each child and parents a notebook to write in about what happens daily.
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What do we say to the N.H.S.? Thank you! We appreciate you and what you do and how you do it.
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Our daughter was diagnosed at birth with Down's syndrome and an Atrioventricular Septal Defect. She had open heart surgery for it at fifteen months old.
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Everything is about love
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“Coraline is already teaching us all kinds of lessons and I can't wait to see her reaching her goals as she grows up and continuing to make an impact on the world.”
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“It is photos of her magnetic smile that can brighten my day instantly and is a daily reminder to stop and enjoy the little and big things going on around me.”
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