Full Blog — Coraline & Us

Steady

I think it's a key lesson to fully feel your feelings, whatever they are, fully feel them and they pass through. kev has oft said this to me.

Attitude, Lifecoach, Hospital, HealthLizDecember 4, 2018

First stop Australia

We went for Coraline’s Cardiology appointment this morning and they said she’s doing great so we can get out and about more.

Attitude, Health, Hospital, Development, TravelsLizNovember 21, 2018

Lionheart

Hamza. That’s what we named this little lion which Coraline’s Aunt, Uncle and cousins sweetly posted to us as a gift to open on the ward.

Health, Hospital, AttitudeLizNovember 17, 2018

Panda time

Coraline and her welcome home panda.

Development, Health, HospitalLizNovember 14, 2018

Heart surgery for an Atrioventricular Septal Defect

Here is a post on why Coraline had open heart surgery. About 50% of babies with Down's syndrome have a congenital heart condition. Coraline has an AVSD.

Health, Hospital, ICULizNovember 13, 2018

Evelina London values

How fortunate we were to be heading to a hospital like this, where everyone we met lived these values.

Attitude, Values, Health, Hospital, ICULizNovember 12, 2018

At Coraline's side

“I don’t know if I anaesthetised her or you hypnotised her”. I thought that was a rather lovely comment from the Anaesthetist.

Attitude, Health, HospitalLizNovember 10, 2018

P.I.C.U. journal

An amazing thing they do in the P.I.C.U. at the Evelina is to give each child and parents a notebook to write in about what happens daily.

Health, Hospital, ICULizNovember 9, 2018

Amazing N.H.S.

What do we say to the N.H.S.? Thank you! We appreciate you and what you do and how you do it.

Health, Hospital, ICULizNovember 8, 2018

Coraline's Paediatric Heart Surgery

Our daughter was diagnosed at birth with Down's syndrome and an Atrioventricular Septal Defect. She had open heart surgery for it at fifteen months old.

Hospital, Health, ICULizNovember 7, 2018

Go further

“You need no knocking as all doors are open and all ways are clear for you.”

Attitude, Hospital, PhilosophicalLizSeptember 28, 2018

He will be fine

“Don’t worry, I’m a pretty good judge of character”

Attitude, Birth, Hospital, ICU, midwife, PhilosophicalLizAugust 9, 2018

At one day old, and at one year old

Bigger than Benedict

Birth, HospitalLizAugust 8, 2018

Coraline's first birthday afternoon

Kevin suggested we go back to the ward where we were for her first week. We wanted to go in and remember, and thank them for the amazing care we received.

Attitude, Birth, HospitalLizAugust 7, 2018