“Do you like it when someone with Down’s syndrome, or someone who has a family member with Down’s syndrome, comes over and says hello?”
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“What is Coraline’s relationship with animals like?”
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“What’s the next big challenge that you think you will face with Coraline?”
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I remember when my daughter was born in the summer of 2017. For me the moment she was born is a defining moment in my life. I believe my purpose was delivered to me that day.
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This week Coraline graduated from @smallstepscharity (because we are are moving away). She also had her last day at her current amazing preschool.
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For weeks at Small Steps free weekly group Coraline resisted the walker and parallel bars. Yesterday she was beginning to do them both herself willingly and calmly, and even smiled as she did
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Coraline’s preschool photo! Kevin calls it “the lounger”. Cardigan knitted by nana’s neighbour in Ireland.
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Home-Start UK featured this piece about my volunteering with them on their Facebook, Instagram and Twitter pages.
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Small Steps group told us it’s good for the core which is important to strengthen for walking.
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After a few weeks of the sessions, I was asking people, “do you think we should keep going to Small Steps?” and half hoping they’d say, “no,” as that would have been easier.
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Me: I mean what do you do when you can’t lift her anymore? What do parents do?
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Monday question: “What is the most difficult thing you have had to deal with related to Coraline lately?” Drafting her Education, Health and Care Plan (EHCP)
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Monday question, “What is one of the sweetest things Coraline is currently doing?”
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All of a sudden Coraline’s preferred way to move around is to take both our hands and step along with us holding them.
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The way he said her name was infused with exhuberance, happiness, excitement to see her and an air of, “oh look Coraline’s here”.
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I would be so grateful if you would consider nominating me in the category "The truth about SEND".
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Monday question, “What is your relationship like with Coraline’s therapists?”
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Monday blogging question: “What is Coraline’s most treasured possession?”
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Coraline’s favourite song is Old McDonald and she can do the sounds for the animals (though she does not yet have words).
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The point is being brave enough to keep going to Small Steps each week, with the belief she will settle, and trusting our instinct that it’s really good for her.
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